How much more time do I have left?
I fell for the second time yesterday. Am I deteriorating more quickly than I thought? I will have to be fed. I will have to be helped on the toilet. These thoughts churn in my mind. For the first time I have a genuine fear of what is to come.
I’ve held it together until this point, but processing all the information about the future is too much. I can’t stop the tears. How much longer will I still be able to walk? To speak? To act normally?
It has been nearly eight years since I was diagnosed with Motor Neurone Disease (MND). When I started writing this book four years ago, I was full of anger, anxiety, fear and frustration. I have changed. It has been a journey of self-discovery, forgiveness of myself, as well as love and acceptance of others.
This is my story about living with MND. But more than that, this is a book about hope, love, spiritual fulfilment, and the lessons I’ve learned on this journey.